NHS Wolfram Syndrome Multi-Disciplinary Clinics
A multidisciplinary clinic has been set up at Birmingham Children's Hospital to provide reviews for children and young people with a suspected or confirmed diagnosis of Wolfram Syndrome.
During the clinic they can access specialist advice for individual medical complications; educational support, emotional support and genetic testing.
They can also access support, advice and information via the Wolfram Syndrome Family Coordinator, whose role it is to help families attend the clinic and support them on the day.
Below is some of the feedback we've had: -
- "It has all been excellent. A long day but well worth it for reassurance, information and opportunities to meet other families. Thank you very much!"
- "Good to meet the other families... would be nice to keep in touch."
- "Comforting to know that there is a team of experts available if you have any questions or if anything comes up."
Watch a parent talking about her experience of the Children's Clinic
2017 Clinic Dates
- 30th and 31st January
- 3rd and 4th July
- 17th and 18th July
- 27th and 28th November Adult Clinics
- 10th February
- 31st March
- 19th May
- 21st July
- 29th September
- 10th November
Clinics are by invitation only for both.