Saturday 7th October 2017, Whittlebury Hall Hotel and Spa, NN12 8QH. 6th Annual WS conference. Start time 10.15 am, registration opens at 9.15 am, finishes at 5.30 pm. Rooms available at same subsidised price as previous years. Book now to secure as limited availability on some room types. Complimentary 3 course dinner Saturday night for those staying over. We have Bentleys lounge reserved for our use before & after dinner. Guests staying over will have the use off the leisure facilities and can pre-book any treatments (payable by the guest) they would like to enjoy. Details of speakers will follow once confirmed. Booking Form here Further details will follow soon
Presentations from Prof Barrett and the UK Clinical Trials team, Dr Patrick Yu Wai Man (Eyes), Dr Malcolm Lewis (Urology), Mrs Stephanie Gebel on behalf of Dr Fumi Urano, Dr Larissa Kerecuk (Rare Disease Lead at Birmingham Children’s Centre). There will also be workshops during the afternoon, sports taster sessions from Royal National College & British Blind Sports & a benefits workshop. A draft programme will be sent out to everyone that has confirmed attendance.
The 5th annual conference took place on Saturday 8th October 2016 with the news that clinical drug trials will be due to start by the end of the year in USA & in the summer 2017 here in the UK. Here is the link for the first of our video presentations from this year’s conference -
All other videos from the conference...
Wolfram Syndrome Conference 2015

Videos from the WS Conference 2014

Prof. Tim Barrett explains the infrastructure of WS research within the UK.
Dr Fumi Urano talking about Patient based Therapeutics for Wolfram Syndrome.
Dr Nicola Beer talking about what happens to your skin biopsy.
Prof. Tim Barrett - ‘Developing treatments for Wolfram Syndrome in Birmingham’.
Slides from a PowerPoint presentation given by Rachel Bates detailing current at the information day on 20th October 2012. (Includes Notes)
Speech from the 2012 Information Day detailing the year's fund raising efforts.
Slides from a PowerPoint presentation given by Professor Tim Barrett detailing current and future research in WS. January 2012.

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