At our 7th annual conference we have some new presentations and workshops for you all to attend. There is a slight increase in the subsidised room costs from this year. If you are staying the Friday night as well we will contribute £10 per person to the cost of your evening meal in either the restaurant or the Silverstone Bar. We have several exhibitors attending on the day to show off things such as the latest VI technology, to provide information etc. Book your place now. Booking form here
Saturday 7th October 2017
Our 6th WS conference was once again held at Whittlebury Hall Hotel with many families and individuals returning once again. This isn’t just a chance to hear updates but also to socialise with each other and the doctors outside of clinic. We had the Royal National College Hereford attend once again and put on some VI sports taster sessions for everyone and this year we also had a Benefits advisor attend. Videos from the day can be seen by using the links below.

Clinical Trial Update by Prof Tim Barrett and Kristian Brock -
‘Visual Loss in WS’ by Dr Patrick Yu Wai Man -
‘USA Trial Update’ by Mrs Stephanie Gebel -
Wolfram Syndrome and the Bladder – Dr Malcolm Lewis -
The 5th annual conference took place on Saturday 8th October 2016 with the news that clinical drug trials will be due to start by the end of the year in USA & in the summer 2017 here in the UK. Here is the link for the first of our video presentations from this year’s conference -
All other videos from the conference...
Wolfram Syndrome Conference 2015

Videos from the WS Conference 2014

Prof. Tim Barrett explains the infrastructure of WS research within the UK.
Dr Fumi Urano talking about Patient based Therapeutics for Wolfram Syndrome.
Dr Nicola Beer talking about what happens to your skin biopsy.
Prof. Tim Barrett - ‘Developing treatments for Wolfram Syndrome in Birmingham’.
Slides from a PowerPoint presentation given by Rachel Bates detailing current at the information day on 20th October 2012. (Includes Notes)
Speech from the 2012 Information Day detailing the year's fund raising efforts.
Slides from a PowerPoint presentation given by Professor Tim Barrett detailing current and future research in WS. January 2012.

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