Wolfram Syndrome UK

By Tracy Lynch

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Home Monitoring Equipment – New 3rd March 2021

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Covid-19 vaccines and Fertility

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Covid-19 Vaccine Communication Handbook

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Covid 19 and Vaccinations update presentation slides – 22nd January 2021

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Please see an update on new shielding advice for people advised to shield in Tier 4 areas – 21st December 2020

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Benefits and Grants Webinar – 11th December 2020

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Updated guidance for people who are clinically extremely vulnerable to Covid-19 – 30th November 2020

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Covid-19 Mind and Body Toolkit – 17th Nov 2020

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Mental Wellbeing help from Sarah Turner – Psychologist at BCH (9th Nov 2020)

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To shield or not to shield: the challenges of covid-19 for patients with rare disease (BMJ – July 17th 2020)

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Webinar 3 Covid-19 and Health – 3rd July 2020

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Covid-19 resources for Parents and Carers from RCPCH

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COVID-19 Risk Assessment for Patients with a Rare Disease – June 2020

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Government’s Coronavirus Community Support Fund Application – 19th June 2020

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By Tracy Lynch

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Children who should be shielded – updated 10th June 2020

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Mental Health and Wellbeing webinar – 22nd May 2020

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Activities for Increasing Happiness – May 2020

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Face Masks Advice – 28th May 2020

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Accessible VI Exercises to do at Home

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Top Tips to Improve your Mood

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WS Specific Information regarding Covid-19 (posted 20th April 2020)

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Increased Risk Patient Letter – 9th April

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WS and Covid-19 webinar – 3rd April 2020

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NHS Advice for everyone – Coronavirus (COVID-19)

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Self-Isolation guide for families from Unique

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Diabetes and Coronavirus

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Government Shielding advice – Updated 5th June 2020

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Major new measures to protect people at highest risk from Coronavirus

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Coronavirus and mental wellbeing – links to tips and protecting mental health

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Get coronavirus support as an extremely vulnerable person – GOV. UK form

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General advice regarding Coronavirus (COVID-19) for patients with rare genetic disorders

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COVID-19 News

Home Monitoring Equipment – New 3rd March 2021

Covid-19 vaccines and Fertility

Covid-19 Vaccine Communication Handbook

Covid 19 and Vaccinations update presentation slides – 22nd January 2021

Please see an update on new shielding advice for people advised to shield in Tier 4 areas – 21st December 2020

Benefits and Grants Webinar – 11th December 2020

Updated guidance for people who are clinically extremely vulnerable to Covid-19 – 30th November 2020

Covid-19 Mind and Body Toolkit – 17th Nov 2020

Mental Wellbeing help from Sarah Turner – Psychologist at BCH (9th Nov 2020)

To shield or not to shield: the challenges of covid-19 for patients with rare disease (BMJ – July 17th 2020)

Webinar 3 Covid-19 and Health – 3rd July 2020

Covid-19 resources for Parents and Carers from RCPCH

COVID-19 Risk Assessment for Patients with a Rare Disease – June 2020

Government’s Coronavirus Community Support Fund Application – 19th June 2020

Children who should be shielded – updated 10th June 2020

Mental Health and Wellbeing webinar – 22nd May 2020

Activities for Increasing Happiness – May 2020

Face Masks Advice – 28th May 2020

Accessible VI Exercises to do at Home

Top Tips to Improve your Mood

WS Specific Information regarding Covid-19 (posted 20th April 2020)

Increased Risk Patient Letter – 9th April

WS and Covid-19 webinar – 3rd April 2020

NHS Advice for everyone – Coronavirus (COVID-19)

Self-Isolation guide for families from Unique

Diabetes and Coronavirus

Government Shielding advice – Updated 5th June 2020

Major new measures to protect people at highest risk from Coronavirus

Coronavirus and mental wellbeing – links to tips and protecting mental health

Get coronavirus support as an extremely vulnerable person – GOV. UK form

General advice regarding Coronavirus (COVID-19) for patients with rare genetic disorders

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