Event Calendar
Please click the button below to view our Event Calendar
Due to the current national and global situation many clinics and charity events are subject to postponement or cancellation. Please check the website or our social media pages for updates.
Keep safe and follow the guidelines given
2021 Events
28th May 2021
Adult Wolfram clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.
1st June 2021
Summer E-Newsletter send out
7th-8th June 2021
Children’s Wolfram clinic
Waterfall House, Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.
16th July 2021
Adult Wolfram clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.
1st September 2021
Autumn E-Newsletter send out
Saturday 18th September 2021
10th Annual WS Conference Part 1 – International Virtual Conference. Details to follow.
Via Zoom
24th September 2021
Adult Wolfram clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.
Saturday 25th September 2021
10th Annual WS Virtual Conference Part 2.
Programme and registration links will be added soon
Friday 1st October 2021
9th Annual Charity Golf Day hosted by Penfold Verrall.
4th-5th October 2021
Children’s Wolfram clinic
Waterfall House, Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.
30th October 2021-TBC
An 80’s Night Christmas with Synthony 101 in Worthing, West Sussex
26th November 2021
Adult Wolfram Clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.
1st December 2021
Winter E-Newsletter send out
Contact & Company Info
Address: 9 Church Way, Worthing BN13 1HD, UK
Phone: 01903 211358
Email: admin@wolframsyndrome.co.uk
Wolfram Syndrome UK – Registered Charity England and Wales no: 1152445
© 2020 Wolfram Syndrome UK.
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