10th-11th January 2022

Children’s Wolfram Clinic

Waterfall House, Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. Clinics may be Virtual or Face to Face.

28th January 2022

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

29th-30th January 2022

London Winter Walk

A great event to walk off the Christmas celebrations, and to kick start your New Year fitness regime! There are Full Marathon & Half Marathon options, both starting & finishing at The Oval Cricket Ground on Saturday 29 & Sunday 30 January, and take in highlights of the Thames, its historic bridges, and many of the Capital’s key landmarks

For full details of prices and to sign up:  https://ultrachallenge.com/london-winter-walk/

1st – 3rd February 2022

International Rare Disease Showcase

Tickets are now available for Findacure’s International Rare Disease Showcase!

Explore international collaborations that are driving rare disease forward. Come discover the impact and challenges of working in the rare space around the world.

The #RareShowcase22 will focus on:

~ Rare disease policy

~ Patient group advocacy

~ Collecting data/RWE

~ New technologies

~ Access, approval & reimbursement

~ Cross-border collaborations

~ Research & drug development

~ And more!

You will enjoy panel discussions and breakout rooms that facilitate active participation, and live streamed presentations from global experts and advocates. They’ve even made time for built-in networking opportunities to replicate the in-person experience we all miss. Register now to enjoy a national, international and supranational exploration of major rare disease themes!

Claim your FREE ticket now to attend on 1st-3rd February!

https://www.findacure.org.uk/rare-disease-showcase/

1st March 2022

Spring Newsletter

7th-8th March 2022

Children’s Wolfram Clinic

Waterfall House, Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. Clinics may be Virtual or Face to Face.

25th March 2022

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

9th April 2022

Easter 50 Challenge

Walk, Jog, or Run a 50km Ultra or take on the 25km half challenge-and make next Easter weekend one to remember. From our Windsor Racecourse base camp 1500 adventurers will head out on looped routes through the Great Park with fantastic views of the Castle, on to Runnymede, along the Thames Path, and takes in some wonderful countryside.

For full details of prices and to sign up: https://www.ultrachallenge.com/easter-challenge

30th April- 1st May 2022

Isle of Wight Challenge

Walk, jog or run the Isle of Wight’s coastal path. Along the southern cliffs, past the iconic Needles and onwards in a full island loop.Choose from the full 100km challenge, 50km half-challenge,or even a 25km quarter distance option, with full hospitality & support, including food, drinks and medics.

For full details of prices and to sign up: https://www.ultrachallenge.com/isle-of-wight-challenge

14th – 15th May 2022

Jurassic Coast Challenge

Join 2,000 adventurers of all experience levels & ages and Walk, Jog or Run the spectacular Jurassic Coast-a World Heritage Site. Starting from Corfe Castle, the route heads past Durdle Door, with ups and downs to West Bay’s famous cliffs (of TV’s Broadchurch fame), before the finish line at Bridport. Choose from the full 100km challenge, a half challenge, or even a 25km quarter distance–it’s your challenge, your way.

For full details of prices and to sign up: https://www.ultrachallenge.com/jurassic-coast-challenge

27th May 2022

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

28th – 29th May 2022

London 2 Brighton Challenge

2,000 adventurers of all experience levels & ages will walk, jog or run this classic capital to coast route. From the Thames, over the North Downs and through the Surrey & Sussex countryside – you can choose from the full 100km challenge, a half challenge, or even a 25km quarter challenge.

For full details of prices and to sign up: https://www.ultrachallenge.com/london-2-brighton-challenge

1st June 2022

Summer newsletter

6th-7th June 2022

Children’s Wolfram Clinic

Waterfall House, Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. Clinics may be Virtual or Face to Face.

11th-12th June 2022

Lake District Challenge

Back again for 2022 – Walk, Jog, or Run the Lake District Challenge and take on England’s finest countryside at your pace. Suitable for all experience levels. Starting from our Kendal Base Camp, you can take on the full 100km Windermere loop, or a half challenge, or even a 25km quarter challenge. With the best support & hospitality all the way.

For full details of prices and to sign up: https://www.ultrachallenge.com/lake-district-challenge

25th-26th June 2022

Cotswold Way Challenge

Walk, jog or run our Cotswold Challenge – with some fantastic views en route and tough hills in between! Our base-camp in Cirencester is the hub for a 100 km looped route through the heart of the Cotswolds, which provides a stunning setting for 2,000 adventurers to test themselves. Choose from the full 100km challenge, a half challenge, or even a 25km quarter distance option.

For full details of prices and to sign up:  https://www.ultrachallenge.com/cotswold-way-challenge

9th-10th July 2022

Peak District Challenge

Join 2,000 adventurers and walk, jog or run this challenge in the fabulous Peak District National Park. This gem in the Heart of England offers 100km, 50km half challenge, and 25km challenge options – all from our Bakewell Base Camp. This is the Ultra Challenge not to be missed in 2022…

For full details of prices and to sign up:  https://www.ultrachallenge.com/peak-district-challenge

15th July 2022

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

23rd-24th July 2022

Yorkshire Challenge

Walk, jog or run our figure of 8 loop through scenic Nidderdale. The full 100 km route is a varied figure of 8 style route which takes in the famous Nidderdale Way, Ripley Castle and Gouthwaite Reservoir. Choose from 100km, 50km or 25km distance options, with full hospitality & support, including food, drinks and medics.

For full details of prices and to sign up:  https://www.ultrachallenge.com/yorkshire-challenge

Friday 29th July 2022

9th WSUK/Penfold Verrall Charity Golf Day

6th August 2022

South West 50 Challenge

This challenge covers some of the stunning Coastal Path, which officially starts in Minehead, on a looped route starting from the impressiveDunster Castle. You can Walk, Jog, or Run up and over the rolling hills of Exmoor, taking in the magnificent views. Starting & finishing at ourDunster Castle base camp, there’s a Saturday night celebration BBQ with camping options. Choose from the full 50km challenge, or the 25km half distance.

For full details of prices and to sign up:  https://ultrachallenge.com/coast-2-coast/

1st September 2022

Autumn newsletter

3rd-4th September 2022

South Coast Challenge

Walk, jog or run up to 100km from Eastbourne to Arundel. Take the full challenge up Beachy Head, over the magnificent Seven Sisters, and along the famous South Downs Way National Trail through Brighton and on to Arundel, or choose from a half challenge or 25km quarter challenge distance.

For full details of prices and to sign up: https://www.ultrachallenge.com/south-coast-challenge

10th-11th September 2022

Thames Path Challenge

Walk, jog or run the Thames Path Challenge, following England’s greatest river. The full Thames Path Challenge 100km route heads from Putney Bridge past Hampton Court to Runnymede of Magna Carta fame at 50km, then on past wonderful historic scenery all the way to Henley. With half & quarter distance options – there’s a challenge for everyone.

For full details ofprices and to sign up: https://www.ultrachallenge.com/thames-path-challenge

10th September 2022

Thames Bridges Trek

Join 2000 trekkers as we venture 25km across the Capital taking in unrivalled views of the skyline from its best vantage points. Setting out from Putney Bridge – it’s East towards the City, zig-zagging over the array of historic bridges – each with its fascinating story.

For full details of prices and to sign up: https://www.ultrachallenge.com/thames-bridges-trek

23rd September 2022

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

24th September 2022

Chiltern 50 Challenge

This challenge covers some of the best of the Chilterns countryside. You can Walk, Jog, or Run along historic trails and over rolling hills. Starting & finishing at our Base Camp in Henley-on-Thames, there’s a Saturday night celebration BBQ & entertainment with camping options. Choose from the full 50km challenge, or the 25km half distance.

For full details of prices and to sign up: https://www.ultrachallenge.com/chiltern-50-challenge

Saturday 24th September 2022 TBC

Virtual Wolfram Syndrome Conference

Details to follow

Saturday 1st October 2022

11th Wolfram Syndrome Conference

Whittlebury Hall Hotel and Spa, Nr Towcester. NN12 8QH.

Details to follow

Saturday 1st October 2022

Wolfram Syndrome Global Awareness Day (WSGAD)

3rd-4th October 2022

Children’s Wolfram Clinic

Waterfall House, Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. Clinics may be Virtual or Face to Face.

29th-30th October 2022

Hallowe’en Walk

Back for 2022 – why not treat yourself to a hair-raising hike around some of the City’s scary streets and historic haunts? Take on a terrifying 10km, a horrific half marathon, or a frightful full marathon distance – all starting & finishing from our Dungeon at the Oval Cricket Ground. Hot food, drinks and a souvenir bobble hat all included!

For full details of prices and to sign up:  https://ultrachallenge.com/halloween-walk/

80’s Night TBC

A night of electro pop from 1979-1989 with Synthony 101.

25th November 2022

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

1st December 2022

Winter newsletter