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Event Dates

Event Calendar

Please click the button below to view our Event Calendar

Due to the current national and global situation many clinics and charity events are subject to postponement or cancellation. Please check the website or our social media pages for updates.

Keep safe and follow the guidelines given

2021 Events

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11th-12th January 2021

Children’s Wolfram clinic

Waterfall House, Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

001-hospital

CANCELLED – 22nd January 2021

Adult Wolfram clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

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29th January 2021 – 2.00pm

PROMsWise Project webinar – Dr Anita Slade and Prof Tim Barrett

 

Details to follow

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February 2021 – Date TBC

Urology webinar – TBC

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1st March 2021

Spring E-newsletter send out

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1st-2nd March 2021

Children’s Wolfram clinic

Waterfall House, Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

003-team

March 2021 – Date TBC

Sports and Fitness webinar – TBC

001-hospital

26th March 2021

Adult Wolfram clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

001-hospital

28th May 2021

Adult Wolfram clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

003-team

1st June 2021

Summer E-Newsletter send out

001-hospital

7th-8th June 2021

Children’s Wolfram clinic

Waterfall House, Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

001-hospital

16th July 2021

Adult Wolfram clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

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1st September 2021

Autumn E-Newsletter send out

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Friday 10th September 2021

9th Annual Charity Golf Day hosted by Penfold Verrall.

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Saturday 18th September 2021

10th Annual WS Conference Part 1 – International Virtual Conference. Details to follow.

Via Zoom

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24th September 2021

Adult Wolfram clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

003-team

Saturday 25th September 2021

10th Annual WS Conference. Details to follow.

Whittlebury Hall Hotel and Spa, Nr Towcester, NN12 8QH

Booking Form can be downloaded here

4th-5th October 2021

Children’s Wolfram clinic

Waterfall House, Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

26th November 2021

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

1st December 2021

Winter E-Newsletter send out

4th December 2021

An 80’s Night Christmas with Synthony 101