Event Dates

13th April 2024

Virtual WS Global Research and Trial Update – 2:00 – 5.00pm 

Wolfram Syndrome UK and Snow Foundation are collaborating to host a virtual conference open to the whole global WS community. For the programme and registration links to each presentation click here

19th April 2024

Charity Football Match

Organised by FJN Solutions in Horsham, West Sussex.

24th May

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st June

Summer Newsletter

10th and 11th June

Children’s Wolfram Clinic

Waterfall House, Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Clinics may be Virtual or Face to Face.)

14th June

6 a-side Charity Football Tournament

Horsham Football Club organised by FJN Solutions

28th June

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

19th July 2024

11th WSUK Charity Golf Day

Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.

1st September

Autumn Newsletter

Saturday 21st September

WSUK Conference – Mercure Daventry Court Hotel, Sedgemoor Way, Daventry. NN11 0SG

Our annual conference. Booking form can accessed here.

27th September

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

7th and 8th October

Children’s Wolfram Clinic

Waterfall House, Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Clinics may be Virtual or Face to Face.)

22nd – 24th October

International Researchers Symposium

the 9th International Symposium with WS researchers from around the world meeting to update and discuss their research.

Invited attendees only

22nd November

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st December

Winter Newsletter