WS Handbooks
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WS Handbooks

Here are three useful sources of information just on Wolfram Syndrome and a further booklet from Euro-WABB which is the European Registry for WS, Alstrom Syndrome and Bardet Biedel.

The first, The Wolfram Information Book, was written by the WS team at Birmingham Children’s Hospital

The Wolfram Syndrome Handbook, produced by WSUK, is a useful guide for families, individuals and any carers whether at school, social care or health care. It has useful information of organisations at the back and case studies as well as useful medical explanations. This is a useful guide whether you are newly diagnosed or not.

The Medical Information Pack contains more detailed information for medical professionals by WS professionals.

EURO-WABB Brochure
An EU Registry for Wolfram, Alström & Bardet-Biedl

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