Helpful Organisations

Helpful Organisations

These are external links to the websites of organisations that offer advice, information and services which may be useful to you.

WellChildWellChild helps sick children and their families across the UK
Genetic Disorders UKSupporting families affected by genetic disorders
ContactThe only national charity that exists to support the families of disabled children whatever their condition or disability
Family FundThe UK’s largest provider of grants to low-income families raising disabled and seriously ill children and young people
Royal Society for Blind ChildrenProvide a range of services in London and across England and Wales for blind and partially sighted children and young people, their families, and the professionals who work alongside them
SENSEFor everyone living with complex disabilities. For everyone who is deafblind. Sense is here to help people communicate and experience the world
RNIBRoyal National Institute for the Blind
National Network of Parent Carer ForumsThe National Network of Parent Carer Forums (NNPCF) is the independent national voice of parent carer forums
Diabetes UKWe are Diabetes UK. Our vision is a world where diabetes can do no harm.

Fight for Sight We are the UK’s largest charity funding pioneering eye research since 1965. We’re here to create a world without sight loss.

Council for Disabled ChildrenAre the umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy-makers
SeeAbilityProvide specialist support, accommodation and eye care help for people with learning disabilities, autism and sight loss
Action on Hearing LossThe UK’s leading charity supporting people with hearing loss, deafness and tinnitus
Rare Disease UKCampaigning on behalf of all those with a rare condition
OrphanetThe portal for rare diseases and orphan drugs
Genetic Alliance UKProduce information for patients, families and anyone interested in genetic conditions
Disabled LivingDisabled Living is a charity which provides impartial information and advice about products, equipment (assistive technology) and services for disabled adults, children, older people, carers and the professionals who support them
Model EHCP Plans from the National Sensory Impairment PartnershipThis document has lots of prompts to help think about the impact of dual sensory loss. The questions would also be useful to help fill in the DLA/PIP form as they help the form filler to think about the persons needs and what they need to help them
Read more…
The Noddy GuideThe Noddy Guide is an overview of the law on special educational needs, and has become an invaluable tool for all of those who work in special educational needs – including judges, practitioners, parents and local authorities.
RNCRoyal National College for the Blind, Hereford
SOS!SENThe Independent Helpline for Special Education Needs. Offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN)
IPSEA Provides EHC plan checklist, including sample letters Independent Parental Special Education Advice (known as IPSEA) is a registered charity (number 327691) operating in England. IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND). They also provide training on the SEND legal framework to parents and carers, professionals and other organisations.

Special Needs JungleParent led information, resources and informed opinion for children and young people 0-25
Queen Alexandra CollegeA National college for people with disabilities
Pluss Pluss is an award-winning Social Enterprise that supports thousands of people with disabilities and other disadvantages move towards and into employment
Remploy – Putting ability firstWe are the UK’s leading disability specialist, transforming lives through sustainable employment. We work with thousands of employers to help them create more
EvenbreakRecruitment site for people with disabilities
Shaw TrustShaw Trust is a charity helping to transform the lives of young people and adults across the UK and internationally.

Work and health programme helps people with disabilities find a job

Looking for workUK Gov website giving helpful advice when looking for work.
Disability Rights UKWe are disabled people leading change, working for equal participation for all
Carers TrustCarers Trust is a major charity for, with and about carers. We work to improve support, services and recognition for anyone living with the challenges of caring, .
Carers UKWe’re here to make life better for carers. We give carers expert advice, information and support. We campaign and innovate to find better ways to reach and support carers.
Carers UK-Gov.UKAdvice and support for carers and the people they care for. … Carer’s Allowance. … Carers UK runs a network of local branches and contacts to support carers and put them in touch with others in their community.
SibsCharity that supports brothers and sisters of CYP/adults who have a disability
VICTAFunding for Technology

Although these third party organisations are shown on our website as they may provide helpful information, they are not endorsed by WSUK