Media Interviews

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Beacon – Rarely Heard Podcast.

Season 3, Episode 1: The importance of Specialist Services for rare disease patients and families

The podcast includes Prof Tim Barrett and Georgina King, WSUK Family Support Co-ordinator[/vc_column_text][vc_btn title=”Link to podcast” color=”violet” link=”url:https%3A%2F%2Fwww.rarebeacon.org%2Frarely-heard%2Fseason-three%2F|||”][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text]

Wolfram Awareness video series 2025-26 – Playlist of videos with affected individuals, parents, researchers and clinicians talking about WS

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Podcast interview with Tracy Lynch – CEO and Co-founder of Wolfram Syndrome UK with Amelia Hilton from RNIB Connect Radio. 5th August 2025

[/vc_column_text][vc_video link=”https://audioboom.com/posts/8758518-wolfram-syndrome-uk”][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text]King Charles III visit to Royal National College, Hereford to celebrate their 150th anniversary – Dec 2022. It includes an interview with on of our WS young adults who is a student there.[/vc_column_text][vc_video link=”https://youtu.be/mlC4rAFTp78″][/vc_column_inner][/vc_row_inner][vc_separator][vc_row_inner css=”.vc_custom_1562327543432{margin-bottom: 15px !important;}”][vc_column_inner width=”1/2″][vc_single_image image=”25934″ img_size=”full” alignment=”center” onclick=”custom_link” img_link_target=”_blank” link=”https://www.spiritfm.net/news/sussex-news/2022815/listen-worthing-charity-gets-nod-from-prime-minister/”][vc_column_text css=”.vc_custom_1632316434639{margin-bottom: 8px !important;}”]

LISTEN: WS Global Awareness Day 1st October 2021

[/vc_column_text][vc_btn title=”Click here to listen” color=”violet” align=”left” i_icon_fontawesome=”fa fa-headphones” add_icon=”true” link=”url:https%3A%2F%2Fwww.wolframsyndrome.co.uk%2Fwp-content%2Fuploads%2Faudios%2FWSGAD_V2_radio_interview.mp3||target:%20_blank|”][/vc_column_inner][vc_column_inner width=”1/2″][vc_single_image image=”26910″ img_size=”full” alignment=”center” onclick=”custom_link” img_link_target=”_blank” link=”http://wolframsyndrome.co.uk/docs/Wolfram%20Syndrome%20Interview%2020150902.mp3″][vc_column_text css=”.vc_custom_1650545123787{margin-bottom: 5px !important;}”]

Medics4RareDiseases Podcast

Dr Lucy McKay (M4RD), Prof Timothy Barrett (WS Lead), Tracy Lynch (CEO & Co-Founder of WSUK) and Abby Gardner (affected adult & WSUK Trustee) talk all things Wolfram Syndrome.[/vc_column_text][vc_btn title=”Click here to listen” color=”violet” align=”left” i_icon_fontawesome=”fa fa-headphones” add_icon=”true” link=”url:https%3A%2F%2Fwww.buzzsprout.com%2F1875024%2F10205386||target:%20_blank|”][/vc_column_inner][/vc_row_inner][vc_separator][vc_row_inner css=”.vc_custom_1562327543432{margin-bottom: 15px !important;}”][vc_column_inner width=”1/2″][vc_single_image image=”25935″ img_size=”full” alignment=”center” onclick=”custom_link” img_link_target=”_blank” link=”https://www.spiritfm.net/news/sussex-news/2022815/listen-worthing-charity-gets-nod-from-prime-minister/”][vc_column_text]A brief interview from Prof Barrett at the 2019 Alstrom Syndrome conference

This can be found on our YouTube channel here[/vc_column_text][vc_btn title=”Donate to WSUK” style=”gradient” gradient_color_2=”violet” shape=”round” size=”lg” align=”center” i_type=”openiconic” i_icon_openiconic=”vc-oi vc-oi-cog” css_animation=”fadeIn” button_block=”true” add_icon=”true” link=”url:https%3A%2F%2Fcafdonate.cafonline.org%2F10242%23%2FDonationDetails||target:%20_blank|” css=”.vc_custom_1560514167406{padding-top: 0px !important;padding-bottom: 0px !important;}”][/vc_column_inner][vc_column_inner width=”1/2″][vc_video link=”https://www.youtube.com/watch?v=hRegHR-tLtE&feature=youtu.be” css_animation=”fadeIn”][vc_column_text]

Audio and slide presentation

given by Tracy Lynch CEO and Co-Founder of WSUK at the Findacure Drug Repurposing Conference 27th Feb 2018.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_separator][vc_row_inner css=”.vc_custom_1562327604681{margin-bottom: 15px !important;}”][vc_column_inner width=”1/2″][vc_single_image image=”1559″ img_size=”full” alignment=”center” onclick=”custom_link” img_link_target=”_blank” link=”https://www.spiritfm.net/news/sussex-news/2022815/listen-worthing-charity-gets-nod-from-prime-minister/”][vc_column_text css=”.vc_custom_1722956920922{margin-bottom: 8px !important;}”]

LISTEN: Worthing Charity Gets Nod From Prime Minister

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Tracy Lynch – CEO of WSUK speaking to Jeni Barnett about Wolfram Syndrome

Live on BBC Sussex on the 2nd September. Daughter Jennifer went in at the end for her picture to be taken with them as well.[/vc_column_text][vc_btn title=”Click here to listen” color=”violet” align=”left” i_icon_fontawesome=”fa fa-headphones” add_icon=”true” link=”url:http%3A%2F%2Fwolframsyndrome.co.uk%2Fwp-content%2Fuploads%2F2019%2F07%2FWolfram-Syndrome-Interview-20150902.mp3||target:%20_blank|”][/vc_column_inner][/vc_row_inner][vc_separator][vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”2355″ img_size=”full” alignment=”center” onclick=”custom_link” img_link_target=”_blank” link=”https://www.youtube.com/channel/UCN__H53QJctkHCqPeKTwnZw”][vc_column_text]

Wolfram Syndrome UK YouTube Channel 2015-2022

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Wolfram Syndrome UK YouTube Channel 2023 –

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