Event Dates

VICTA – Visit a Christmas Experience near you.

Who: Families

Cost: Reimburse the cost of your VI child’s ticket up to a maximum value of £25 per child

Please note: One Christmas event offer per family

Join the festivities in your local area with the support of VICTA! VICTA is offering to reimburse the cost of your VI child’s ticket (up to 17 years) when you visit a Christmas experience as a family. You can choose an experience near you – this can include a Christmas light show, Christmas pantomime, theatre show or experience; the visit must take place on or before Sunday 3 January 2027. VICTA will reimburse up to a maximum of £25 per vision impaired child. to find out more click here

If you have any questions about this offer, please get in touch with the activities team at activities@victa.org.uk

1st October

Fundraising Together for Wolfram – Oct26

The campaign has been extended to tun until 2nd December

27th November

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

2nd December

Winter Newsletter

11th – 12th January

Children’s Wolfram Clinic

Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital or the Family Support Co-ordinators. (Virtual clinic or Face to Face.)

22nd January (TBC)

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st March

Spring Newsletter

8th – 9th March

Children’s Wolfram Clinic

Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital or the Family Support Co-ordinators. (Virtual clinic or Face to Face.)

26th March (TBC)

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

23rd April

FJN Charity Football

28th May (TBC)

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st June

Summer Newsletter

7th – 8th June

Children’s Wolfram Clinic

Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital or the Family Support Co-ordinators. (Virtual clinic or Face to Face.)

23rd July (TBC)

Adult Wolfram Clinic – Transition

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

23rd July

14th WSUK Charity Golf Day

Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.

Sponsored by –

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1st September

Autumn Newsletter

13th – 14th September

Children’s Wolfram Clinic

Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital or the Family Support Co-ordinators. (Virtual clinic or Face to Face.)

24th September (TBC)

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st October

WS Global Awareness Day/Month

16th October 2027

WSUK Annual Conference

The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.

26th November (TBC)

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st December

Winter Newsletter