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Event Calendar

Please click the button below to view our Event Calendar

Due to the current national and global situation many clinics and charity events are subject to postponement or cancellation. Please check the website or our social media pages for updates.

Keep safe and follow the guidelines given

2021 Events

30th October 2021- FAC101

A night of electro pop from 1979-1989 with Synthony 101.

Being held at The Factory Live, Ivy Arch Road, Worthing. Doors open at 19:30. Tickets are £16.50 each (inc booking fee).

Tickets can be purchased here

26th November 2021

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. This may be a Virtual clinic or Face to Face.

1st December 2021

Winter E-Newsletter send out

2022 Events

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1st March 2022

Spring Newsletter

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1st June 2022

Summer newsletter

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Friday 29th July 2022

9th WSUK/Penfold Verrall Charity Golf Day

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1st September 2022

Autumn newsletter

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Saturday 24th September 2022 TBC

Virtual Wolfram Syndrome Conference

Details to follow

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Saturday 1st October 2022

11th Wolfram Syndrome Conference

Whittlebury Hall Hotel and Spa, Nr Towcester. NN12 8QH.

Details to follow

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Saturday 1st October 2022

Wolfram Syndrome Global Awareness Day (WSGAD)

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1st December 2022

Winter newsletter