Event Dates
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Event Dates

Event Calendar

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3rd and 4th June

Children’s Clinic, Waterfall House, the Rare Disease Centre at Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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15th and 16th July

Children’s Clinic, Waterfall House, the Rare Disease Centre at Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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19th July

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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26th July

7th Annual Golf Day sponsored by Penfold Verrall

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27th September

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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28th September

Our 8th annual conference at Whittlebury Hall Hotel. Prices the same as for 2018. Presentations from 3 visiting doctors from Washington University Hospital and a Prof from the Institute of Neuroscience Milan. Further details and booking form here

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7th and 8th October

Children’s Clinic, Waterfall House, the Rare Disease Centre at Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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29th November

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

2020 Events

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Friday 26th July

8th Annual Charity Golf Day

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Saturday 29th February

Rare Disease Day

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Saturday 26th September

9th Annual WS Conference. 9.00 – 5.00 at Whittlebury Hall Hotel

WSUK joins Breaking Down Barriers Project

WSUK is excited to announce that we will be taking part in this year’s Breaking Down Barriers Project, funded by the Sylvia Adams Charitable Trust...

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Autumn Newsletter

This quarters newsletter contains news updates, information about our upcoming conference, fundraising events, how you can get involved and...

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