Welcome, you have found the site for Wolfram Syndrome UK (WSUK); the only charity and website in the UK for this condition. We started in 2010, as the only website associated with WS was a worldwide site. There was no easy to read information available and no real support, as many medical professionals had or still have never heard or come across the syndrome. It was felt the UK required a website where families could find information and support that might be helpful to them.

WSUK became a registered charity in June 2013. We work closely with the 2 hospitals that run the WS clinics in Birmingham and host an annual conference for those affected, their families, support teams, medical professionals and researchers.

WSUK as a national charity help fund research and provide support for those affected by the condition and their families. We feel the more people that know about WS the better; and will endeavour to make sure that hospitals, Doctors and other health care professionals are aware of this site.

Our aim is to raise as much awareness of this syndrome as we can.