Carer’s Wellbeing Update – August 2021

This pilot project, funded by the National Lottery Community Fund, has made good progress throughout the summer. Almost all of our 20 carer participants have been able to start or continue their wellbeing activities following the easing of restrictions, with 5 carers now fully completed.

As the pilot is heading towards completion, we have started planning for the next phase. Our goal is to apply for new grant funding that will enable us to launch a second phase of the project. Feedback provided by our current carer participants will form an important part of our new funding application. Thank you to all our carers who have shared very positive feedback so far – your contribution will provide important evidence for potential funders. If you are a participant who has not yet been able to give feedback, please get in touch with Marie (mariemcgee@wolframsyndrome.co.uk) or Tracy (admin@wolframsyndrome.co.uk) to share your thoughts.

This autumn we will be sending all our WSUK carers a short Registration of Interest Form that will help us understand the number of carers who are potentially interested in being part of a second phase of this project.