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Action on Hearing LossThe UK’s leading charity supporting people with hearing loss, deafness and tinnitus |
Helpful Organisations
These are external links to the websites of organisations that offer advice, information and services which may be useful to you.
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The Autistic Societyhas launched a diagnosis advice and support hub packed with evidence-based advice and guidance and practical resources, to help support people before, during, and after diagnosis |
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Blind Parents UKFormerly Blind Mums Connect. Supporting any parent/parent-to-be with a visual impairment. Through all stages of parenting, whether you need specific support or simply wish to meet others. We also offer one-to-one peer support, feeding/sling/carrier support and a range of other ways to get involved if you find Facebook tricky. contact the Blind Parents UK admin page or email info@blindparents.uk for more |
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Caudwell Children We do whatever it takes to help change the future of disabled and autistic children by providing diagnosis, equipment, services and support to help them lead a full and active life. |
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Contact The only national charity that exists to support the families of disabled children whatever their condition or disability |
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Council for Disabled ChildrenAre the umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy-makers |
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Deafblind UK |
We are here because too many people are living with deafblindness and are not getting the help they need. We show people that there can be a life beyond deafblindness.
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Diabetes UKWe are Diabetes UK. Our vision is a world where diabetes can do no harm. |
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Disability Rights UKDisability Rights UK is the UK’s leading organisation led by, run by, and working for Disabled people.We work with Disabled People’s Organisations and Government across the UK to influence regional and national change for better rights, benefits, quality of life and economic opportunities for Disabled people. |
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Disabled LivingDisabled Living is a charity which provides impartial information and advice about products, equipment (assistive technology) and services for disabled adults, children, older people, carers and the professionals who support them |
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Family FundThe UK’s largest provider of grants to low-income families raising disabled and seriously ill children and young people.
Existing claimants please be aware the renewals are now every 24 months in England and Wales |
Fight for Sight We are the UK’s largest charity funding pioneering eye research since 1965. We’re here to create a world without sight loss.
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Gene People Gene People, previously known as Genetic Disorders UK, is a registered charity with a vision to improve the lives of individuals and families affected by genetic disorders. |
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Genetic Alliance UKProduce information for patients, families and anyone interested in genetic conditions |
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Guide DogsFind out how we can support you every step of the way through one of our many services, with and without dogs. By understanding what you and your family want from life, today and tomorrow, we can help you plan to achieve it by getting help. Click here .
If you are looking to support someone and would like to know more about Sighted Guide Training go to the Guide Dogs website
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The InDependent Diabetes Trust We are an organisation for people living with diabetes run by people living with diabetes. Read more |
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Look UKWe are Look, and we’re on a mission to support young visually impaired people and their families to thrive. We do this through mentoring, transformational events, youth forums and parent support groups. |
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Mind We provide advice and support to empower anyone experiencing a mental health problem. We campaign to improve services, raise awareness and promote understanding |
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National Network of Parent Carer ForumsThe National Network of Parent Carer Forums (NNPCF) is the independent national voice of parent carer forums |
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OrphanetThe portal for rare diseases and orphan drugs |
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The Partially Sighted Society.
We are a national charity here to help anybody living with sight loss. Our specialist services focus on helping you to make the best use of your remaining vision and our friendly team are at the end of a phone if you or someone you know is affected by sight loss. |
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Rare Disease UKCampaigning on behalf of all those with a rare condition |
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Renaissance Legal specialise in working with families and carers of disabled and vulnerable individuals, helping them plan effectively for the future with Wills, Trusts, Powers of Attorney, Court of Protection applications and Inheritance Tax Planning. |
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RNIBRoyal National Institute for the Blind |
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RNIBResources for blind or partially sighted parents |
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RNIB Connect Radiobroadcasts 24 hours a day, every day, on various platforms including Freeview Channel 730, online streaming, smart speakers. You can also listen to RNIB Connect Radio live on RNIB’s website and tune into recorded shows. |
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Royal Society for Blind ChildrenProvide a range of services in London and across England and Wales for blind and partially sighted children and young people, their families, and the professionals who work alongside them |
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SeeAbilityProvide specialist support, accommodation and eye care help for people with learning disabilities, autism and sight loss |
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SENSEFor everyone living with complex disabilities. For everyone who is deafblind. Sense is here to help people communicate and experience the world |
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SightlineWe are a charity based in the north-west of England offering a FREE telephone-based befriending service designed to reduce loneliness and isolation for anyone living with a visual impairment. |
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SignHealthWe are a passionate and caring Deaf-led team working towards a future where there are no barriers to good health and wellbeing for Deaf people.
We partner with the NHS and service providers across the country. We are one of the UK’s largest employers of Deaf people, and most hearing staff in our projects and services are fluent sign language users. |
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The DirectoryFrom Disabled Living, The Directory is a really useful online resource for sourcing information and advice on equipment, products and services for disabled individuals, older people, and those that support them, with the additional bonus of a review section. |
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Thomas Pocklington TrustThomas Pocklington Trust is a national charity which supports blind and partially sighted people with a focus on Education, Employment and Engagement |
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VICTAIf you are the parent of a child who is blind or partially sighted, or a young adult aged 29 or under who is visually impaired, VICTA is here to help. Why not explore our activities, services and grant programmes. |
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VI Talk VI Talk is a CIO (charitable incorporated organisation) supporting blind and partially sighted people, their families and friends. It is also aimed at anyone who works in the field of visual impairment. |
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WellChildWellChild helps sick children and their families across the UK |
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WSUK Helpful Organisations Directory This is a directory of organisations we have put together for different topics that may prove helpful to you. |
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YoungMindsWe’re the UK’s leading charity fighting for children and young people’s mental health.
We want to see a world where no young person feels alone with their mental health, and all young people get the mental health support they need, when they need it, no matter what. |
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Barclays Life Skills
Are you ready to think about the areas you might like to develop further? Spin the Wheel of Strengths and reflect on not only your skills, but also your interests and personality traits, and how to develop them further to support your future. |
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Calibre Audio Library
Calibre Audio is an amazing collection of over 12,000 audiobooks. Everyday we send out 1,700 books to our members |
 Coram Children’s Centrepart of the Coram group of charities, promotes and protects the rights of children in the UK and internationally in line with the UN Convention on the Rights of the Child. |
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Derwen CollegeA specialist college for young adults (aged 16–25) with special educational needs and disabilities (SEND).
Our positive and empowering culture gives students the confidence and experience to live life their own way.
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Guide to Additional Learning Needs (ALN) law in WalesThe Education team at barristers’ chambers Civitas Law has launched a Guide to Additional Learning Needs (ALN) law in Wales – offering legal guidance for parents, educators, local authorities, and legal professionals navigating what they describe as an “evolving legal landscape”. We don’t have very many in this area but useful just in case. |
 InFocusChildren and young adults with special educational needs (SEN) and visual impairment often face barriers to learning, living and taking an active, independent place in society.InFocus provides the specialist expertise, equipment and adapted facilities to inspire, challenge and empower these young people from across the UK to live their best lives. |
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IPSEA Provides EHC plan checklist, including sample letters Independent Parental Special Education Advice (known as IPSEA) is a registered charity (number 327691) operating in England. IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND). They also provide training on the SEND legal framework to parents and carers, professionals and other organisations. |
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Model EHCP Plans from the National Sensory Impairment PartnershipThis document has lots of prompts to help think about the impact of dual sensory loss. The questions would also be useful to help fill in the DLA/PIP form as they help the form filler to think about the persons needs and what they need to help them |
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New College WorcesterNCW is a national residential school and college for young people aged 11 to 19 who are blind or vision impaired. |
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The Noddy GuideThe Noddy Guide is an overview of the law on special educational needs, and has become an invaluable tool for all of those who work in special educational needs – including judges, practitioners, parents and local authorities. |
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Queen Alexandra CollegeA National college for people with disabilities |
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RNCRoyal National College for the Blind, Hereford |
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SENDIASS – Local Authority specific |
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SEN Legal With over 20 years experience in SEN and disability, SEN Legal are a national and highly specialised legal practice with an excellent reputation. We specialise in solving problems and obtaining special educational provision for children and young persons aged 0-25. We are extremely proud of our constant success rate of over 90% for the last decade. Whatever your problem, we can help |
Snowdon TrustThe Snowdon Trust provides grants to physically disabled and sensory impaired students studying in the UK in further or higher education or those training towards employment.
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Special Needs JungleParent led information, resources and informed opinion for children and young people 0-25 |
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SOS!SENThe Independent Helpline for Special Education Needs. Offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN) |
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Thomas Pocklington TrustThomas Pocklington Trust is a national charity which supports blind and partially sighted people with a focus on Education, Employment and Engagement |
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Barclays Life Skills
Are you ready to think about the areas you might like to develop further? Spin the Wheel of Strengths and reflect on not only your skills, but also your interests and personality traits, and how to develop them further to support your future. |
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EvenbreakRecruitment site for people with disabilities |
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Looking for workUK Gov website giving helpful advice when looking for work. |
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Pluss Pluss is an award-winning Social Enterprise that supports thousands of people with disabilities and other disadvantages move towards and into employment |
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Remploy – Putting ability firstWe are the UK’s leading disability specialist, transforming lives through sustainable employment. We work with thousands of employers to help them create more |
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Shaw TrustShaw Trust is a charity helping to transform the lives of young people and adults across the UK and internationally.
Work and health programme helps people with disabilities find a job |
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Thomas Pocklington TrustThomas Pocklington Trust is a national charity which supports blind and partially sighted people with a focus on Education, Employment and Engagement |
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Carers TrustCarers Trust is a major charity for, with and about carers. We work to improve support, services and recognition for anyone living with the challenges of caring, . |
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Carers UKWe’re here to make life better for carers. We give carers expert advice, information and support. We campaign and innovate to find better ways to reach and support carers. |
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Carers UK-Gov.UKAdvice and support for carers and the people they care for. … Carer’s Allowance. … Carers UK runs a network of local branches and contacts to support carers and put them in touch with others in their community. |
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Caring for youis a wellbeing toolkit for unpaid Carers offering practical activities and tips to deal with specific emotions which can arise from having a caring role, as well as ideas on how to maintain a good overall wellbeing. Download from the Carers Trust website. |
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Disability Rights UKWe are disabled people leading change, working for equal participation for all |
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WSUK Helpful Organisations Directory This is a directory of organisations we have put together for different topics that may prove helpful to you. |
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Young Carers AllianceThe Young Carers Alliance is a growing network of over 100 organisations and 200 individuals committed to changing this and improving the support available for young carers, young adult carers and their families. |
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Young Carers – Action for ChildrenOur support helps young carers come to terms with their parent’s or other family member’s illness or condition. We teach them how to cope, and guide them to build positive relationships outside the family. We help young carers plan for the future, by making sure they can access adult services when they’re 18. |
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SibsCharity that supports brothers and sisters of CYP/adults who have a disability |
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Young Carers AllianceThe Young Carers Alliance is a growing network of over 100 organisations and 200 individuals committed to changing this and improving the support available for young carers, young adult carers and their families. |
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AbilityNet |
AbilityNet empowers disabled and older people to use technology at home, at work and in education.
We also work with businesses and public sector organisations, to help them build more accessible and inclusive workplaces, websites and apps.
 British Wireless for the Blind |
Launched in 1928 we have been providing radios to visually impaired people for 90 years. We pride ourselves on providing a personal service to each individual who receives a new set.
By providing the equipment on a free loan to those who are unable to afford a specially adapted radio we help improve the daily lives of visually impaired people.
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Enhanced Vision |
Our extensive line of low vision aids have helped thousands of people regain their visual independence by providing the ability to read, write, see loved ones, or enjoy the outdoors. We are able to achieve these extraordinary results by offering the most diverse and reliable line of low vision aids available
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Support for parents and carers to keep children safe online |
While there are huge benefits to being online to stay connected to family and friends, the government recognises many parents feel concerned about the activities and content their children are accessing. This guidance outlines resources to help keep children safe from different risks online and where to go to get support and advice.
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Guide Dogs |
Mobile phone accessibility features
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Humanware |
For over 30 years, HumanWare’s inspirational vision has resulted in a range of highly intuitive and intelligent solutions that empower people who are blind or with low vision by giving them the independence to participate effectively within a sighted world.
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Low Vision Aids |
World Leaders in Low vision Magnification for People with Macular Degeneration and other Eye Conditions.
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Pamtrad |
With over three decades of experience in the technical side of visual impairment, Pamtrad offers a range of equipment for low vision and blindness that are both the latest technology and great value for money.
We strive to manufacture and provide products to suit all areas of sight difficulties, whether it is for reading and writing, using a computer or practical work.
Pamtrad now covers the whole of the UK with agents in Edinburgh, Nottingham, Stafford, London, South West England, North West England and Ireland
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RealSAM |
Simple talking solutions for people living with Sight Loss
Read document for article related to this post.
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RNIB Connect Radio |
Broadcasts 24 hours a day, every day, on various platforms including Freeview Channel 730, online streaming, smart speakers. You can also listen to RNIB Connect Radio live on RNIB’s website and tune into recorded shows.
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Talking News Federation |
The Talking News Federation exists to support and assist over 300 local Talking Newspapers to deliver local news and information in audio to blind, partially sighted and print disabled people.
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UK Safer Internet Centre |
Guides and resources -Parents and Carers
Tips, advice, guides and resources to help keep your child safe online
As a parent or carer you play a key role in helping your child to stay safe online.
You don’t need to be an expert on the internet to help keep your child stay safe online. Our advice and resources are here to support you as you support your child to use the internet safely, responsibility and positively.
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VICTAFunding for Technology |
VICTA supports children and young adults who are blind or partially sighted by providing grants that support the purchase of equipment to aid their visual impairment
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Vision Aid |
We have grown to become one of the largest specialist low vision and blindness product suppliers in the UK. Our range of over 1000 products are carefully tested & selected from over 100 manufacturers around the world.
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Together for Short Lives |
If you are caring for a child with a serious illness and need help or advice, or just someone to talk to, our helpline and family support hub is here for you
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VoyageCare |
VoyageCare is a sector leading provider, with 35 years experience of specialist care and support. We support over 3,500 people with learning disabilities, autism, brain injuries and other complex needs across the UK.
Although these third party organisations are shown on our website as they may provide helpful information, they are not endorsed by WSUK
Contact & Company Info
Address: 9 Church Way, Worthing BN13 1HD, UK
Phone: 01903 211358
Email: admin@wolframsyndrome.co.uk
Wolfram Syndrome UK – Registered Charity England and Wales no: 1152445
© 2023 Wolfram Syndrome UK.
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