Event Calendar
Please click the button below to view our Event Calendar
Event Dates
Clinics and charity events can be subject to postponement or cancellation. Please check the website or our social media pages for updates.
2024 Events
1st December
Winter Newsletter
2025 Events
13th – 14th January
Children’s Wolfram Clinic
Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the Family Support Co-ordinators and the hospital.
24th January
Adult Wolfram Clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)
1st March
Spring Newsletter
10th – 11th March
Children’s Wolfram Clinic
Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the Family Support Co-ordinators and the hospital.
28th March
Adult Wolfram Clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)
4th April
FJN Charity Football Match
Horsham, West Sussex
5th May
New College Worcester – Family Day – 10:30am – 3:30pm
Family Day is a fun and exciting day for any family who has a child with a vision impairment. The day offers a range of activities for all ages – parents, grandparents, brothers and sisters are all welcome!
You will have the chance to meet and chat with our staff, students and other parents attending, in an informal and friendly environment.
Family Day is a relaxed way to find out more about NCW or simply have a fun day out with the family enjoying activities that are accessible to children who have a vision impairment.
Activities normally include pony ride, animal handling, arts and crafts, zorbs, tandem rides, tennis, golf and many more!
The day is totally free of charge and includes lunch and refreshments.
Should you wish to visit NCW to have a full tour of the campus, observe lessons and talk to staff in detail about the VI curriculum and our residential settings, we would more than welcome you to book a visit on a normal school day.
To find out more and to register for this go to Family Day May 2025 – New College Worcester
23rd May
Adult Wolfram Clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)
1st June
Summer Newsletter
16th – 17th June
Children’s Wolfram Clinic
Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the Family Support Co-ordinators and the hospital.
27th June
Charity 6-a-side Football Tournament
Organised by FJN at Horsham, West Sussex
18th July
12th WSUK Charity Golf Day
Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.
Sponsored by –
& 
25th July
Adult Wolfram Clinic – Transition Clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)
1st September
Autumn Newsletter
20th September
WSUK annual Conference
The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.
Booking form and draft agenda will be available soon on our conference page
26th September
Adult Wolfram Clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)
6th – 7th October
Children’s Wolfram Clinic
Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the Family Support Co-ordinators and the hospital.
28th November
Adult Wolfram Clinic
Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)
1st December
Winter Newsletter
Contact & Company Info
Address: 9 Church Way, Worthing BN13 1HD, UK
Phone: 01903 211358
Email: admin@wolframsyndrome.co.uk
Wolfram Syndrome UK – Registered Charity England and Wales no: 1152445
© 2023 Wolfram Syndrome UK.
 |
 |