Event Dates

22nd May

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st June

Summer Newsletter

3rd-4th June

11th International Researcher’s Symposium, Windsor, UK

Researchers from around the world will be attending and presenting their latest research into looking for treatments and a cure for WS. (Invitation only)

16th – 17th June

Children’s Wolfram Clinic 

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

17th July

13th WSUK Charity Golf Day

Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.

Sponsored by –

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31st July

Adult Wolfram Clinic – Transition Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

16th – 23rd August

VICTA Summer Camp 14-17 year olds

Applications are open for the VICTA Summer Camp 2026!

Get ready for 8 action packed days filled with fun, laughter and unforgettable experiences with new friends.

~ When: Sunday 16 August to Sunday 23 August

~ Who: 14 to 17 years

~ Location: Scout Adventures Youlbury, Boars Hill, OX1 5HD

~ Cost: £200

~ Closing date: Friday 15 May

Join us to take part in lots of new and life changing experiences! During the day, you can look forward to thrill-seeking with an Aerial Trek and ziplining. You’ll also try out VI sport, and compete in Taskmaster challenges with your fellow campmates.

In the evenings, there will be campfires, games and the opportunity to listen and network with VICTA young adults and guest speakers who have gone on to have success in sport, business and many other fields.

Previous years’ camps have included days off-site for bowling, sledging, making and mixing music, trying out VI Rugby, volunteering in the local community and creating nature art.

As part of the camp, you’ll also earn yourself a Leadership qualification and an Arts Award Discover.

With an accommodation block exclusively for VICTA in a beautiful woodland backdrop, the Summer Camp offers a safe and supportive setting, surrounded by like-minded people.

Don’t miss your chance to apply via the link below!

VICTA Summer Camp 2026 – VICTA

1st September

Autumn Newsletter

21st – 22nd September

Children’s Wolfram Clinic 

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

25th September

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

26th September

WSUK Annual Conference

The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.

1st October

WS Global Awareness Day/Month

27th November

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st December

Winter Newsletter

1st March

Spring Newsletter

1st October

WS Global Awareness Day/Month

16th October 2027

WSUK Annual Conference

The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.