If you or a member of your family have been recently diagnosed and would like to talk to someone who has been on the same journey then please phone and someone from the WSUK team will be there to offer advice and support. 

If no one is available then please leave your name, telephone number and a message and someone will get back to you within 24 hours (or the next working day if a weekend), or you can email the office. 

Please don’t believe everything you read on all the other websites you may look at, there are many inaccuracies on them. The only other websites with correct facts are The Snow Foundation and the Worldwide Society of Wolfram Syndrome Families DIDMOAD. 

All the information on this site is checked by a medical professional.