Event Calendar
Please click the button below to view our Event Calendar
Please click the button below to view our Event Calendar
Clinics and charity events can be subject to postponement or cancellation. Please check the website or our social media pages for updates.

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)


Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)


Researchers from around the world will be attending and presenting their latest research into looking for treatments and a cure for WS.

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.
Sponsored by –
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Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.



Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)
