Event Dates

5th November

Children’s Virtual Wolfram Clinic

An invite and link will be sent by BCH. DO NOT travel to the hospital.

13th November

Children’s Virtual Wolfram Clinic

An invite and link will be sent by BCH. DO NOT travel to the hospital.

15th November

Virtual Wolfram conference 2. 2.00pm- 5.00pm TBC

Global researchers presenting on their research to all the WS global community.

Programme and registration links will be sent out 3 weeks before via email and social media posts.

1st December

Winter Newsletter

12th December

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

12th – 13th  January

Children’s Wolfram Clinic 

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

23rd January

Adult Wolfram Clinic – New Referrals

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st March

Spring Newsletter

16th – 17th March

Children’s Wolfram Clinic 

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

27th March – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

22nd May – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st June

Summer Newsletter

3rd-4th June

11th International Researcher’s Symposium, Windsor, UK

Researchers from around the world will be attending and presenting their latest research into looking for treatments and a cure for WS.

16th – 17th June

Children’s Wolfram Clinic 

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

24th July – TBC

Adult Wolfram Clinic – Transition Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

17th July – TBC

13th WSUK Charity Golf Day

Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.

Sponsored by –

& 

1st September

Autumn Newsletter

21st – 22nd September

Children’s Wolfram Clinic 

Waterfall House, Birmingham Children’s Hospital, Steelhouse Lane, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

25th September – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

26th September – TBC

WSUK Annual Conference

The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.

1st October

WS Global Awareness Day/Month

27th November – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st December

Winter Newsletter