Event Dates

16th – 17th June

Children’s Wolfram Clinic

Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the Family Support Co-ordinators and the hospital.

27th June

Charity 6-a-side Football Tournament

Organised by FJN at Horsham, West Sussex

18th July

12th WSUK Charity Golf Day

Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.

Sponsored by –

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25th July

Adult Wolfram Clinic – Transition Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st September

Autumn Newsletter

20th September

WSUK annual Conference

The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.

Booking form and draft agenda will be available soon on our conference page

26th September

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

6th – 7th October

Children’s Wolfram Clinic

Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the Family Support Co-ordinators and the hospital.

28th November

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

1st December

Winter Newsletter