Event Dates

Event Calendar

Please click the button below to view our Event Calendar

Clinics and charity events can be subject to postponement or cancellation. Please check the website or our social media pages for updates.

2025 Events

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1st September

Autumn Newsletter

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20th September

WSUK annual Conference

The Mercure Daventry Court Hotel, Sedgemoor Way, Daventry.

Booking form and draft agenda will be available soon on our conference page

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26th September

Adult Wolfram Clinic – Transition

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

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6th – 7th October

Children’s Wolfram Clinic

Waterfall House at Birmingham Children’s Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the Family Support Co-ordinators and the hospital.

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25th October

Virtual Wolfram conference 1. 2.00pm- 5.00pm TBC

Global researchers presenting on their research to all the WS global community.

Programme and registration links will be sent out 3 weeks before via email and social media posts.

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5th November

Children’s Virtual Wolfram Clinic

An invite and link will be sent by BCH. DO NOT travel to the hospital.

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13th November

Children’s Virtual Wolfram Clinic

An invite and link will be sent by BCH. DO NOT travel to the hospital.

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15th November

Virtual Wolfram conference 2. 2.00pm- 5.00pm TBC

Global researchers presenting on their research to all the WS global community.

Programme and registration links will be sent out 3 weeks before via email and social media posts.

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28th November

Adult Wolfram Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

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1st December

Winter Newsletter

2026 Events

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23rd January

Adult Wolfram Clinic – New Referrals

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

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1st March

Spring Newsletter

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27th March – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

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22nd May – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

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1st June

Summer Newsletter

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3rd-4th June

11th International Researcher’s Symposium, Windsor, UK

 

Researchers from around the world will be attending and presenting their latest research into looking for treatments and a cure for WS.

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24th July – TBC

Adult Wolfram Clinic – Transition Clinic

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

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17th July – TBC

13th WSUK Charity Golf Day

Our annual charity golf day with teams of invited golfers at Mannings Heath Golf and Wine Estate.

Sponsored by –

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1st September

Autumn Newsletter

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25th September – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

001-hospital

27th November – TBC

Adult Wolfram Clinic 

Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital. (Virtual clinic or Face to Face.)

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1st December

Winter Newsletter