DLA – Is your child on the right level of DLA? Did you know, you may be entitled to the High Rate Mobility.
The High rate mobility element on DLA is paid to children with a severe vision impairment and visual acuity of 6/20. Please get in touch with your local ophthalmologist who will be able to discuss your child’s visual impairment and whether you qualify for this element. Please see A-Guide-to-Disability-Living-Allowance-Factsheet.pdf (dls.org.uk) page 6; or Contact’s DLA Advice page for information.
Use the free cerebra guide to complete your DLA application form Disability Living Allowance (DLA) – Cerebra
PIP –
is your child approaching 16? You may be transferred to PIP soon! You may want to start gathering evidence of your child’s care needs to support your transfer to PIP. Local Citizen Advice Bureau’s offer a service to help. www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/your-assessment/
Carers –
Did you know you are entitled to a carer’s assessment. Under the Children and Families Act 2014, if you are a parent carer of a disabled child under 18 you are entitled to a carer’s needs assessment. Contact your local authority for more. Find your local council – GOV.UK (www.gov.uk)
If your child has a sibling they may be eligible for the young carer’s project. Young Carer’s supports siblings in families where there is a child or adult with a disability. Check out Young Carers and apply your local authority. Young carers | Action For Children
The Carer’s Leave Act
The Carer’s Leave Act has opened up many more possibilities for carers who are employed. These new changes will come into effect from the 6 April 2024.
See how this could help you by clicking here
Requests for flexible working if you are a working parent of a disabled child.
The Act defines a statutory request as a request for a change to an employee’s terms and conditions relating to their hours, times or place of work. The Code provides guidance for employers and employees on their legal rights, responsibilities and good practice in making and handling statutory requests for flexible working.
Acas Code of Practice on requests for flexible working (HTML version) – GOV.UK (www.gov.uk)
Family fund Grant – You can apply for a Family Fund grant if you are the parent, or carer, of a disabled child and you meet our eligibility criteria. The easiest way to apply is online, through our family portal.
Transition to Adult Services FAQ – A panel of WellChild (the national charity for sick children) Transition Specialist Nurses and experienced parents answer questions parents often have about transitioning from children’s to adult services.
Post 16 –
As some of you head into post 16 education in September, these handy resources are aimed at helping you identify your pathway and where to go next.
Post-16 Pathways – Resources | GROWS
If you are struggling after diagnosis and the realisation of your child’s sight loss, this resource from RNIB helps to navigate some of those feelings.
Diagnosis and Emotional Wellbeing | RNIB | RNIB
