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TREATWolfram clinical trial to unlock a potential treatment for a rare disease
Spreading the word in the Rare Disease Day supplement in The Guardian 29th February 2024 |
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Winners of the Twyford Together Community Awards 2023 – 19th March 2023One of the winners was teenager Clara who took part in a fun run in 2022 raising funds for WSUK. |
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Changes to Private Parking charges Read the full article or go to gov.uk |
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WS Teenager takes part in Twyford fun run – 15th October 2021 |
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Worthing charity hosts fundraiser for ‘ultra-rare’ Wolfram Syndrome– 14th October 2021
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Wolfram Syndrome – Our journey
Spreading the word in the Rare Disease Day supplement in The Guardian 28th February 2020 |
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What Mother’s Day Means to Me!
A blog written for Genetic Disorders UK by Tracy Lynch CEO and Co-Founder WSUK- March 2017 |
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Dursley teenager with extremely rare genetic disorder to raise funds for charity in SainsburysWednesday 3rd August 2016Georgina Carolan is fundraising and has managed to get a newspaper article about it as well. Well done Georgina. |
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Couple honoured for tireless charity workMonday 20th June 2016From The Argus |
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Jennifer in the news Worthing Herald March 2016Thursday 3rd March 2016 |
Contact & Company Info
Address: 9 Church Way, Worthing BN13 1HD, UK
Phone: 01903 211358
Email: admin@wolframsyndrome.co.uk
Wolfram Syndrome UK – Registered Charity England and Wales no: 1152445
© 2023 Wolfram Syndrome UK.
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