These are external links to the websites of global organisations that offer advice, information and services which may be useful to you ….
International WS Organisations
International WS Organisations
Eye Hope Foundation
WS charity based in Belgium
Association syndrome de Wolfram
French WS Support Group
The Snow Foundation
Support & Fundraising group supporting research around the world (US)
Dr. Urano’s Blog
A ‘blog’ site by Fumihiko Urano – detailing current research into WS
Worldwide Society of Wolfram Syndrome Families
A support group for families affected by WS (US)
Wolfram-Syndrom
German WS Website
Alliance of Families Affected by Wolfram Syndrome (AFASW)
The Spanish support group for WS
Gentian
The Italian Association for Wolfram Syndrome
Unravel Wolfram Syndrome
Another information site from the USA
Euro-WABB
An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes.
Ellie White Foundation
Ellie White Foundation For Rare Genetic Disorders
Be a Tiger Foundation
To accelerate the discovery of treatments and cures for Wolfram Syndrome and eventually other rare and ultra-rare diseases.
Wolfram Heroes Saudi Arabia
We decided to carry the flag for rare
diseases in Saudi Arabia
The Association for Research and Assistance to Wolfram Syndrome
The Association for Research and Assistance to Wolfram Syndrome
Although these third party organisations are shown on our website as they may provide helpful information, they are not endorsed by WSUK
Website Visitors
Contact & Company Info
Address: 9 Church Way, Worthing BN13 1HD, UK
Phone: 01903 211358
Email: admin@wolframsyndrome.co.uk
Wolfram Syndrome UK – Registered Charity England and Wales no: 1152445
© 2023 Wolfram Syndrome UK.
 |
 |