International WS Organisations

These are external links to the websites of global organisations that offer advice, information and services which may be useful to you ….

Association syndrome de Wolfram

French WS Support Group

The Snow Foundation

Support & Fundraising group supporting research around the world (US)

Dr. Urano’s Blog

A ‘blog’ site by Fumihiko Urano – detailing current research into WS

Worldwide Society of Wolfram Syndrome Families

A support group for families affected by WS (US)

Alliance of Families Affected by Wolfram Syndrome (AFASW)

The Spanish support group for WS

Gentian

The Italian Association for Wolfram Syndrome

Ellie White Foundation

Ellie White Foundation For Rare Genetic Disorders

Be a Tiger Foundation

To accelerate the discovery of treatments and cures for Wolfram Syndrome and eventually other rare and ultra-rare diseases.

Wolfram Heroes Saudi Arabia

We decided to carry the flag for rare
diseases in Saudi Arabia

The Association for Research and Assistance to Wolfram Syndrome

The Jewish Wolfram Network is dedicated to raising awareness, advancing research and supporting families affected by the Ashkenazi subtype of Wolfram syndrome. Our mission is to connect patients, caregivers, medical professionals and researchers to foster understanding, accelerate medical breakthroughs and improve the lives of those living with this condition.

Brazilian Wolfram Syndrome Association (ABSW)

The Brazilian Wolfram Syndrome Association (ABSW) is a philanthropic organization founded in 2017, dedicated to offering assistance, promotional, recreational, educational and legal support to patients and families impacted by Wolfram Syndrome.

Although these third party organisations are shown on our website as they may provide helpful information, they are not endorsed by WSUK

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