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Breaking Down Barriers

Welcome to Breaking Down Barriers with Wolfram Syndrome UK

Championing Equality, Diversity and Inclusion

Wolfram Syndrome UK (WSUK) is part of a network of over 40 organisations working together to improve the lives of families from diverse and marginalised communities, so they have equal access to health services.

One objective of Breaking Down Barriers (BDB) is to strengthen the ability of patient organisations and support groups such as WSUK to develop more supportive and inclusive services for individuals and families affected by genetic disorders e.g. Wolfram Syndrome.

WSUK is an active participant of the BDB network and is conducting specific activities to increase our engagement with diverse communities affected by WS to better understand their needs and help us to provide more inclusive services and support.

The materials we develop through our BDB work are included on these pages, including your personal stories, experiences and top tips

Introduction Videos

A brief video introducing you to Breaking Down Barriers

Helpful organisations for BAME communities

Below is a list of organisations that may be helpful to you.

More links and information about helpful organisations dealing with education, technology and benefits can be found on this website in the Resources and Helpful Links section on this website or by using these links http://wolframsyndrome.co.uk/helpful-organisations/or http://wolframsyndrome.co.uk/benefits

NORTH MANCHESTER BLACK HEALTH FORUM A user led registered charity (No 1024631) registered in 1993 that works with vulnerable adults, women and families from marginalised communities living with long-term health conditions, poverty & economic pressures. Offers information & sign posting to local people with social care, housing & welfare benefits enquiries
AMINA – Muslim Women’s Resource CentreAmina is an award-winning organisation, recognised by Muslim communities and key partners within Scotland for its pioneering and responsive approach to addressing key issues and needs of Muslim women.

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ASIAN RESOURCE CENTREBirmingham – is a front-line community based, not-for-profit organisation situated in the Handsworth district of Birmingham. The Centre serves the needs of the local communities, most of whom are BAME, through the use of their own mother-tongues, with a deep understanding of the religious, cultural and national aspirations of the people it serves. It provides resources and practical help, with a coherent policy of anti-racism, anti-sexism and non-discriminatory practices.
ADVOCACY PROJECTWe help marginalised and vulnerable people make effective choices about what happens in their lives. We support them to speak up and help improve important services we all need.
ANTENNA OUTREACH SERVICEAntenna Outreach Service is a culturally sensitive mental health service. We work with Black African & African Caribbean people aged between 16 – 25 years old, suffering from mental health problems. We offer individual and parental support, advice and practical help. Phone: 020 8365 9537; Email: antenna@outreachservice.fsnet.co.uk
BLACK MENTAL HEALTH RESOURCE CENTREAdvice, counselling, complimentary therapies and advocacy for service users. Bushbury House, 4 Laurel Mount, St. Mary’s Road, Leeds LS7 3JX tel. 0113 237 4229
CONFEDERATION OF INDIAN ORGANISATIONS (UK)Umbrella body which aims to represent the needs of the South Asian community in the UK. This Project (in Southwark and Lambeth) aims to ensure that Asian women with mental health problems have access to appropriate information and support services.
GREENWICH MINDOffers free counselling for clients from the Caribbean, African, Black British community living in Greenwich Borough. Clients must be aged 18+ can be self-referred or referred through their GP or their supporting organisation. We offer long term and short term counselling, Short term 6-12 sessions. Long term 24 sessions. Email: hazel.Williams@greenwichmind.co.uk ;Tel:0208 853 1735
MUSLIM COMMUNITY HELPLINE The Muslim Community Helpline is a confidential, non-judgemental listening and emotional support service. The Muslim Community Helpline is a national organisation for women, men, youth and children which was launched in 2007.

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NAFSIYATThe Intercultural Therapy Centre (www.nafsiyat.org.uk) Offers Intercultural psychotherapy and counselling. tel. 020 7263 6947; email: admin@nafsiyat.org.uk
THE OREMI CENTREHestia provides an integrated mental health service which is specifically targeted at local people of African and Caribbean descent, from its Oremi Centre on Golborne Road. The Oremi Centre is a relaxed, supportive environment and it provides a range of outreach and recovery programmes. Trellick Tower 5 Golborne Road, London W10 5PA. Tel:020 8964 0033; Email: jenny.webb@hestia.org
SHEFFIELD AFRICAN CARIBBEAN MENTAL HEALTH ASSOCIATION SACMHA has almost 30 years of experience of delivering specialist services to people in need of assistance with their health and social care needs. This could be because of their age, youth, disability, financial hardship or social disadvantage. SACMHA acknowledges and support the role of carers in its service provision.
RETHINK SEVERE MENTAL ILLNESSSahayak Asian Befriending Project Befriending service for Asian people aged 16 and over with mental health problems or who are experiencing emotional distress. Assistance with accessing mental health services. Promotion of mental health awareness within the Asian communities.
WALTHAM FOREST BLACK PEOPLE’S MENTAL HEALTH ASSOCIATIONTo support and empower Black People with mental health problems. To raise awareness about important mental health issues in the Black Community. To provide a forum for Black People to meet and discuss their personal mental health needs. Individual counselling is offered to users each week.
BLACK DISABLED PEOPLE’S ASSOCIATION (Brent Council)Exists to provide an effective support and advice network for Black disabled people living with physical, mental, or debilitating impairments across London.
SOUTH ASIAN HEALTH FOUNDATIONPromoting improvements in the quality of healthcare to South Asians across the UK. South Asian Health Foundation (SAHF) is a registered charity founded in 1999 to promote good health in the UK’s South Asian communities. We are one of the UK’s leading British Asian health 35 charities.

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THE MENTOR CIRCLEThe Mentor Circle is a mission-led organisation set up by Tunde Yusuff with a talented group of business owners and professionals from diverse backgrounds. as well as widening inequality in the UK, we believe young people now more than ever need mentorship and guidance from business leaders.

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Project Nai ZindagiProject Nai Zindagi – meaning New Life is our brand new Hyndburn-wide project. This project is all about engaging with Muslim women to prepare them to access other mainstream provisions such as training, volunteering and employment.

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AFRICAN CARIBBEAN MENTAL HEALTH SERVICESProvides advocacy and an advice service. Also counselling, self-help group and carers group.
BLACK ORCHIDThe aim of Black orchid is to provide culturally sensitive and appropriate mental health advocacy for people of African, Caribbean and other ethnic minority groups, between the ages of 16 and 65. First Floor, 189c Newfoundland Road, Bristol BS2 9NY tel. 0117 907 9982 /0117 904 8280; email: black@orchid189c.fsnet.co.uk
GLOUCESTERSHIRE BLACK MENTAL HEALTH PROJECTHome visits, welfare rights benefits, Support, advice and information for people with mental health problems who are from the African, Asian, Chinese and African Caribbean communities. 27 Worcester Street Gloucester GL1 3AJ. Tel: 01452 387744
MUSLIM YOUTH HELPLINE (MYH)The core service is a free and confidential counselling service available nationally via the telephone, email, internet and a face to face befriending service in the Greater London area. Run by young Muslims trained in Islamic counselling skills.
MUSLIM WOMEN’S NETWORKThe overall goal of the helpline is to provide a national specialist faith and culturally sensitive service that is confidential and non-judgmental. The helpline offers information, support, guidance and referrals to Asian and Muslim women and girls from diverse ethnic / faith backgrounds.

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TAMARIND CENTREThe Tamarind Centre is a registered charity that was established in 1989 (formally known as Coventry Black Mental Health Association). The Primary aim of the organisation is to provide support to the BME (Black Minority Ethnic) Communities of Coventry in particular African Caribbean and Asian people who are experiencing Mental Ill Health, using the services we offer.

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SAHAARA – Women’s wellbeing support groupThe support group provides creative activities and approaches as a pathway for promoting and maintaining mental and emotional wellbeing; building self-confidence and an opportunity to engage with other people. We aim to help people lead on to further education, training courses, volunteering and/or employment.

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THE HARMONY PROJECT
Therapeutic intervention for individuals and families through 1 to 1 counselling, group work, family support and workshops in schools. Tel: 020 7511 2800 Crisis line no: 0800 169 7261 email: info@harmony-project.co.uk