WS Conference

On Saturday 13th April WSUK and The Snow Foundation hosted a virtual global trial and research update for the whole global WS community. We  invited four researchers from four different countries to present about their work. Where permitted recordings of the presentations have been added.

Click on each image below to view the presentations.

Our 2023 WSUK conference was held in a new venue, The Mercure Daventry Court Hotel, Daventry.

New for this year, we ran a couple of Basic First Aid workshops. Those who attended received a participation certificate.

On the Friday night there was a fun, accessible social event (Bingo and quiz) for those who were staying over.

Below are presentations from the day. Unfortunately due to Covid and a train strike, 2 of our presenters were unable to attend in person, so we had them join virtually. This was a first for us to have a mix of live and virtual. This meant that the presenter was unable to hear the questions asked, so there was a delay whilst these were typed in to chat for them to then answer. This therefore causes a few delays during the recordings being presented here. (Better editing is being looked into and they will be updated if possible)

Our first face-2-face conference since 2019 was held at Whittlebury Park Hotel. Please see the presentations below. If you have any questions, please send them to the WSUK office at admin@wolframsyndrome.co.uk

Presentations from the virtual conference can be found below.

25th September saw the second of 4 presentations and two workshops as part of this year’s two day virtual conference.

This year is our 10th annual conference and once again was attended by WS members from around the world.

Presentations can be seen below. (Presentation 5 will be added once some of the data in the presentation has been published)

18th September saw the first of 4 presentations as part of this year’s two day virtual conference.

This year is our 10th annual conference and once again was attended by WS members from around the world.

Presentations can be seen below. (Presentation 4 will be added once some of the data in the presentation has been published)

Our 9th annual conference was this year held via Zoom due to Coronavirus.

Although this meant we weren’t able to meet up in person, it did allow us to open our conference up to a more Global audience where everyone could join at the same time. This was the first truly International conference for the whole WS Community whether you are an affected person, a family member, clinician or researcher and I’m glad that WSUK were able to facilitate this.

Next year we hope to be able to meet up again in person.

We have some of our WSUK branded re-usable facemasks still available. Details can be found on the shop page on how to order.

The 8th annual conference at Whittlebury Hall Hotel was once again well attended. Presentations were given by 3 visiting doctors from Washington University Hospital, Dr’s Fumi Urano, Tamara Hershey and Bess Marshall. Due to unforeseen circumstances Prof Vania Broccoli from Italy was unable to attend, so Federica D’elia from the Italian WS Support Group, Gentian, gave a brief presentation and then Prof Tim Barrett gave an update on the UK’s TREATWolfram trial instead. At the end of the day WSUK Chief Executive Tracy Lynch launched our new website, which has new pages, more information and images.

You can watch the presentations from the day by clicking on the relevant link below.   

The 7th annual conference on 6th October was again well attended with some members attending for the first time. We had presentations from some of the Birmingham team, a presentation and workshops held by Philip Warford from Renaissance Legal and Psychology workshops run by Dr Angela Reiersen from Washington University Hospital, USA. Videos from the day can be seen by clicking on the relevant links below.