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Home
About Us
What is WS?
Our Vision
Meet the Team
Annual Reports
Our Policies
Our Projects
Resources & Helpful Links
International WS Organisations
Helpful Organisations
Resources & Medical Papers
Recreation
Benefits & Grants
News
Newsletters
Latest News
Archived News
COVID-19 Information
Articles
Media Interviews
Your Stories
Awards
Get Involved
Event Dates
Fundraising Inspiration
Make a Donation
WS Shop
Other Fundraising Links
Gallery
Our Services
Clinic Dates & Information
Who’s Who at the WS Clinic
Family Support
WS Conference
Clinical Trials & Research Updates
WS Handbooks
Breaking Down Barriers (BDB)
BDB Community Videos
For Medical Professionals
Contact Us
Archive
To shield or not to shield: the challenges of covid-19 for patients with rare disease (BMJ – July 17th 2020)
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Face Coverings
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By Tracy Lynch
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Webinar 3 Covid-19 and Health – 3rd July 2020
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Covid-19 resources for Parents and Carers from RCPCH
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COVID-19 Risk Assessment for Patients with a Rare Disease – June 2020
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Government’s Coronavirus Community Support Fund Application – 19th June 2020
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By Tracy Lynch
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Children who should be shielded – updated 10th June 2020
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Summer Newsletter
Welcome to our Summer newsletter in these strange times for all of us.
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By Tracy Lynch
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Mental Health and Wellbeing webinar – 22nd May 2020
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Activities for Increasing Happiness – May 2020
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