For Medical Professionals

This page shares information that may prove helpful to you in caring for your WS patient, giving you more of an insight into the condition.

If you have diagnosed or are diagnosing a new patient with WS you will find the addresses for sending the child/family/adult to the relevant Wolfram Syndrome MDT service in Birmingham. There are MDT clinics held at Birmingham Women’s & Children’s Hospital at least 3 times a year, & also at the Queen Elizabeth Hospital, Birmingham at least 6 times a year. An affected person can not be seen there without a referral from a GP or diagnosing doctor. Some of the information here can also be shared with the WS affected person/family.

WSUK Information Pack

GeneReviews - WFS1 Spectrum Disorder

What is Wolfram Syndrome?

WFS Variants

Resources & Medical Papers

Rare Disease Organisations, Search Engines & Sources of Information.

GG6 Dominant Inheritance leaflet

GG12 Recessive Inheritance leaflet

Education Sites for Professionals

How to make a referral to a NHS WS Clinic?

For the Children’s Wolfram Syndrome Clinic, fax, email (using a secure network) or post the referral to the clinic administrator:

Wolfram Syndrome Clinic
Diabetes Home Care
Birmingham Children’s Hospital
Steelhouse Lane
Birmingham
B4 6NH

Fax: 0121 333 9272

For the Adult clinic, email (using a secure network) or post the referral to:

Amelia Hadjali : Secretary to Dr A Sturrock
Re Wolfram Syndrome Clinic
4^th floor East Block
Heritage building
Neurology
Queen Elizabeth Hospital
B15 2TH

Tel: 07919280674
Email: Amelia.Hadjali@uhb.nhs.uk or

WS clinic lead email: Aaron.Sturrock@uhb.nhs.uk

Please contact the WSUK for further help or information – Tel: 01903 211358 or email admin@wolframsyndrome.co.uk.

How to support a child with WS at School

This guidance suggests ways in which you can support a pupil with Wolfram Syndrome.

This guidance looks at what can be done to help prepare a child with complex medical needs to return to school after the holidays. Including, travel, food, equipment, and more!

Need help encouraging a student with Wolfram Syndrome to take part in PE?

Sainsbury’s Inclusive PE training provides free training workshops and resources for teachers, trainee teachers and school staff.

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